You remember yesterday/last night/actually early this morning, when I was musing about how I want to leave a mark in the world, to do something important and worthy with my life? The gist was that I couldn't really fully put into words what I was longing for, but I've found it! I found the words to explain my mission! Whenever I read the Hands Free Mama blog, it's perfect timing for something, either a struggle I'm going through or a thought or philosophy taking shape that needed a little guidance and a shove in the final direction. This time, I came across this article called Your Most Important Role, In Case Someone Forgets, and I'll go ahead and copy the sections that jumped out at me the loudest.

I ended up taking that two-hour drive with Scott. I can’t even remember if he got the job; I only remember the look of gratitude on his face when he dropped me off, saying he would have been way more nervous if he’d gone alone. All I’d done was simply remind him of what he already knew—the good stuff we tend to forget about ourselves in times of doubt, stress, uncertainty, and fear.

Over the past two decades, I’ve referred to that experience many times: As a special education teacher looking into the eyes of a young man who killed his pet … as a mother whose Noticer of Life child admitted she felt “different” from the rest … as a confidant whose friend confessed dark truths she thought made her unworthy of happiness and true love.

“You might not be able to see it right now, but you hold great value,” I’d said to all of these precious people. “I see your value. And I am here to remind you when you forget.”

I have a dear friend who has written a literary masterpiece coming out in April that “illuminates one highly dysfunctional family’s tentative, desperate crawl toward a life of meaning and worth.” My friend says it happened largely because I believed in her. What Katrina doesn’t understand is that I had no choice. Her gift was so obvious and so needed in this hurting world I simply could not let her give up.

While working on the manuscript for my third book a few weeks ago, I needed grammar assistance. I knew exactly who to go to for help.

“Thank you, literary genius,” I texted Katrina after she provided exactly what I needed.

“You’re welcome, soul changer,” she wrote back.

I began to cry.

Out of all the things I could be in this world, I couldn’t think of anything better than that.

Soul changer

I never had to ask my friend what she meant by the term.

I knew exactly what it meant because of the experiences I had with my husband, my former student, and my child.

It means seeing someone’s inner light when he cannot see it for himself. It means putting your hands protectively around her light through upheavals and uncertainties so the precious light doesn’t diminish. It means reminding people of the beautiful things they know, but tend to forget, about themselves.

And I don’t do it for others due to noble reasons; I do it because it is what I hope someone will do for me. And because certain people in my life have done it for me.

One night Avery was playing her guitar and singing her heart out. Suddenly, I remembered an uplifting video I wanted to show her. As a self-professed “fan of adorable old people,” I knew Avery would enjoy seeing this video showing the impact of familiar songs on despondent seniors in a retirement home. The video was so touching and so personal, the newscaster lost his composure at the end of the segment.

After seeing the way the guitar-playing music therapist brought foot taping and hand clapping to the nearly lifeless seniors who began to sing along, Avery jumped up with excitement. “Music therapist? I never knew there was such a thing! I could do that, Mama! I want to do that!”

“There is very strong connection between music and memories,” I repeated from the news clip. “Just imagine. You could transport elderly people back to a beautiful time in their lives. You could help them remember their best memories and remind them of who they are.”

Soul changer

It suddenly occurred to me that we all have instruments in which we can change people’s souls. Some instruments are more obvious than others, but we all have them. Sadly, some people may never even know they’ve changed someone’s soul.

Soul changers

Thank goodness, they are all around us. Thank goodness, they are within us.

My friends, what an important role each of you play in this often-hurting world. You have the power and the instrument to help someone remember these critical truths: You are worthy. You hold value. You are not alone. 

Perhaps you do it with strong hugs or comfort food delivered right to their doors.
Perhaps you do it with a make-up brush and healing hands.
Perhaps you do it with long drives, quiet presence, or faithful prayers.
Maybe it is your green thumb or the tender way you wipe tears.
Maybe it’s the way you remember people’s names and say them with love.
Maybe it’s the way you bring humor to heavy situations or drop everything when needed.
Maybe it’s the way you always know when to pick up the phone or send a hand-written card.

Soul changers

Sometimes all we need to believe in ourselves is one person to remind us of what we already know.

And like a familiar tune from long ago, just a few notes is all we need to start tapping our toes and singing the lyrics we never forgot. And low and behold, we find it’s just the anthem we need to carry on.

That, my dear friends, is what I want to be. That is the essence of what I found myself longing for after hearing Rachel Scott's story, after watching The Mission for the first time and every time after when I listened to the soundtrack with my eyes closed. That's the quintessential Mark Maker that I want to be, the one people remember as the changer and caretaker of souls. Even just one.

I know that I truly loved my work with The Healing Journey, even though it brought up a lot of difficult things for me in the dark of night, and I know that I would have thrown my whole self into my massage therapy, had I been able to complete the training. I continually gravitate toward these professions of healing and helping, because that's who I am. That's what I wanna be. Now that my body is in a state of constant rebellion I can't accomplish the goals I once had for myself, but the delicious thing is that I can be a soul changer and a caretaker of hearts even from the depths of my own pain and from the cushions of my couch. It doesn't seem like such an unattainable goal after all, framed in this kind of concept. The very very best part? I know that I've already met this goal many times over, but each time will be beautiful all over again. Also, when you invest in the people around you, they tend to turn around and take care of you right back, which I've experienced much of. Now that I'm more dependent than ever, I have a lot of good people who have my back. Give and receive, ebb and flow.

Suddenly the next 28 years don't seem so much of a burden anymore.

So it's been a while! After a while, news builds up and becomes all the newsier, meaning that I'm really doing everyone a favor by waiting a long time in between posts to make sure that I actually have something to talk about. The problem is that life just keeps happening, no matter whether I'm writing or not, and as it all builds up and builds up the thought of writing about it becomes more and more exhausting until I've totally talked myself out of it! Or sometimes I'll talk myself into it, but forget the most important parts lol.

So what's been going on with me? Well, I saw the head doctors, both of 'em (neurologist and psychiatrist) and I'm trying out two new meds. The one from the head shrinker is a mood stabilizer for Mood Disorder Not Otherwise Specified (because I'm too complex to just label with bipolar or manic-depression, of course!) and it has the potential to make me quite depressed. I've been feeling that for sure lately, though not entirely certain it's med related. I was having problems with depression at least a week before I saw the psych, and it only got worse for a while there but it feels like it's easing up some. Now I'm struggling with sleep problems. This could be related to an interplay between the new psych med and the mild sedative from the neurologist to keep me from twitching, but for a few days at a stretch now and then, and for past several days right now, it seems that I can't stay asleep but I can't stay awake either. The result is a groggy, drowsy, constantly nodding off lady who wakes up to find herself doing random things or finishing sentences that make no sense at all and have no bearing on what's happening around her. I'll have a thought process going on that is much like the thought processes you have in dreams, so very disjointed and unrelated to reality, but I'll come back and "wake up" halfway through or right at the end and say the last part out loud… but realize as I'm saying it that it's thoroughly nonsensical. I was talking to Bob Cat earlier today before hopping in an Epsom bath for my legs and was saying something about how it wasn't going to happen until I'd swallowed enough jade. It made perfect sense until I woke up at the jade part and finished my sentence, with a mental image of myself downing handfuls of jade beads like they were prescription pills! Crazy.

So there's that, and I feel like I'm going crazy and my days are just a muddle of nonsense, but when I'm "sober" I'm doing quite well. There's a storm front that moved through last night and today and I am definitely feeling it! I'm taking my regular strong pain killers, plus a couple extra (since I now have that luxury when needed), and drinking an ale now and then to help give the pills some "oomph". I know you're totally not supposed to do that, but even with the really strong pain meds I'm at "take me to the Emergency Room" pain levels, which is saying something. Can you imagine where I'd be at should I not have the good medication that I finally have? I'd be done for.

I still think about the last few months before I found this pain doctor, and how excruciating they were, and how I was honestly dying. My body was under so much stress from the unceasing, incredibly high levels of pain and other symptoms that my vital strength was just… slipping away. Fading. My organs were shutting down, bit by bit. Blood tests tell me that the functioning is good, so I'm happy about that. I'm mostly happy to not feel like I'm fading away, to feel like even though I'm still sick and being "attacked by gremlins" (as we've decided to euphemize the situation) and that won't likely change in the course of my life that I can still participate and be a real person, not just a fading ghost or a memory of the friend someone used to have.

I have had some interesting new health news from the past few weeks of dr's appts, and that is that I have a double stranded DNA, whatever that means. I guess I have to do some more research on that one and what it can mean, but one of my lupie friends assures me that it can mean any number of things. Then there's the whole Mood Disorder thing; that was a bit of a surprise! All of the doctors and specialists I've seen in the past couple of weeks, though, have totally and completely supported my EDS theory and my work towards going to Tucson to see the Rheumatology Department there for a diagnosis, if possible. The pain doc brought up another possibility, due to my "testing positive" for Lupus again (from blood tests done just last month), and that is arthritic lupus, rather than the kind that gets in there and destroys your organs and whatnot. He is seeing more of an arthritic type of involvement with the pain than simple fibromyalgia can account for, so we'll see. I have been dealing with a very strong and potent case of pitting edema in my lower legs, ankles, and feet as well as intermittently in my hands and forearms, but I have a doctor's appointment next week to see if that's of any concern at all. 

I started physical therapy yesterday, and I can tell that it's going to be grueling but beneficial. I'll have to keep strong boundaries with my therapists and not completely destroy myself trying to please them, as I have energy barriers that most patients don't have to deal with I think, but my therapist is very understanding and good to work with, so I should be fine. We'll be focusing on my back, and also on exercises to help me lose the weight that I've gained this past year from the meds, improper diet, and a sedentary lifestyle. They will be very valuable, as I'm hard pressed to find exercise that are effective yet low impact and considerate of my physical de-conditioning. I realized during my evaluation with my therapist that I'm really a lot weaker than I've ever been.

Oh, one more "exciting" thing that happened is that my disability claim was denied. This was rather expected, as the odds of getting approved the first time through are notoriously low, but I was hoping that we might be one of the lucky ones. The "Tiara Fund" fundraiser that I started has really really helped to take some of the immediate financial pressure off of us that we were facing, and so has the monthly couple-of-hundred from BioDad, but honestly the financial difficulties haven't eased up at all. If anything, they've increased since my doctors keep adding more and more specialists to my treatment team, and while that's a good thing I just don't have the money for all of these appointment copays and the bills that follow after and the prescriptions I need to get by!  Just looking at the funds raised is kind of laughable, because what difference is $400 going to make in the grand scheme of things? And yet… it lifted a heavy burden from the Robot's mind because we were not relying solely on his paycheck for basic living expenses and medical funds. He makes enough to keep us in house and home, but that's it. If something unexpected happens, or if I need some money for medical stuff, that's a straw that'll break our little glass camel's back. Don't feel sorry for us-- we're doing just fine, and there are plenty of folks who have it much tougher than we do, I know that. It just does get tough sometimes, living with the constant stress of "how in the world am I going to pay for this?!", especially when the "this" is necessary medical help.

Anyway, enough of medical and financial woes! Exciting stuff, exciting stuff… this is getting hard to do, as I'm still in that "drifty" state where I keep nodding off to sleep in the middle of typing. It makes my words a little unpredictable in spelling, and also the content of my thoughts a little outrageous. That last sentence, for example, almost came out as "It makes my outfits a little unpredictable, but they benefit from it in the long run." I had an image of this radical blue tiger stripe tie dye shirt-dress that I was wearing instead of my usual more boring clothes, and I was genuinely excited for a moment about opening up the package and wearing it for a minute… until I realized it wasn't real and that I was supposed to be talking about words. Gaaah! Focus, woman, focus!

I have a massage in just a few hours, which can't come soon enough, as the weather that passed over brought me to the ground with pain and swelling in my legs. I tried to get Drogo to rub my feet, ankles. and lower legs, and he did so briefly and reluctantly, but he really dislikes massaging. It's like pulling teeth to get him to rub my back or feet or something. Doesn't matter that I could really, really use it or that he could be "fixing the problem" as he so loves and is deeply motivated to do, he just doesn't like it and is bored by it and so I go massage-less most of the time. I often wake myself in the night with my arms lifted above my head, massaging and stroking my hands and forearms, or my face and head and neck. It's kind of weird, but whatever. I'll get by. I always do.

I'm seriously flagging here, so I'll wrap things up by sharing the most adorable thing EVER! My friend the Artist went to a Comic Con  a few months back, and I was super super jealous because she got to meet the most amaaaaaazing people within the geek culture and see the coolest stuff, etc. etc. etc. So she paid to have an artwork commissioned for the Robot and I, but it's taken this entire time for the artist to get around to it I guess. Today she posted it on my Facebook wall, and she had some really neat things to say about it in the conversation we had around the picture itself. Another friend of mine also commented on our marriage in a very positive way, and it was very encouraging since I've been feeling a little discouraged about our relationship lately (a lot of it fueled by chronic stress, and insecurity over my appearance now that I've gained so much weight). We even had a "talk" on Sunday, which was mostly me talking at him and explaining what I was feeling and why and citing some examples and him explaining his perspective and me reordering and reorganizing my thoughts around this new information and realizing that we're actually okay after all and it was all fine and I was just breaking down under the stress is all but he didn't mind because he's awesome like that and just bore up under it patiently like he does and walked me through it. I could wish that he were more passionate in daily life, more demonstrative of deep affection and emotional displays, but it is the solid bearing up and the refusal to be flapped and bothered and moved out of place that signals his love to me, strong and sure as a beacon. I just sometimes lose sight of his particular version of affection and passion, start comparing our relationship to "others"… and let me tell you something: that doesn't work. Ever. Even if I were healthy and we did have the sunshine and rainbows that we so long for (because we've walked in a miserable, cold, rainy mist for so long now!), every relationship is different and looks different and functions differently, and my main concern ought to be "Are we healthy? Are we okay with us?" Because that's what's important. It's not important whether or not he does _____ like so and so does (although that would be super cute and sweet and nice), it's important that he is still here, and not going anywhere, and that he still thinks I'm pretty and that he believes that I can still do things but he also doesn't hold any illusions about what I can no longer do and he keeps me from sailing off of a cliff with the best of intentions to carry me forward. The picture that my friend commissioned, it's… well, it's perfect. It's us. And seeing it, reading her description of her hopes for its creation, really helped to remind me that what we have is perfect for us, and we have made no mistake in coming together and creating a life that is a blend of the two of us. We have done just what we needed to, and that's beautiful. We're beautiful. And seeing us from an outside perspective did a little something inside of me to push away some of the stress and make a cozy little space where I could just nestle down and really see and appreciate the beauty of what and who we are as a couple.

Without further ado (because I'm totally rambling now), I give you… the Robot and his Lady!

My friend the Artist (not the artist who drew this), says, "I know the one thing I really wanted out of this, was to show that through the ups and downs of stressing over bills, you battling your illness and Corey stressing over how to handle things, that no matter what you guys can make it. And together you guys make a great team, warriors and lovers, conquering any obstacle that comes both your way. I remember paying her during the time when I was up in phoenix when you were going through at lot when I was reading your blogs. So I figure this would be a perfect gift for you guys. and I am very happy how well she was able to illustrate in what I wanted." My other friends said, "Oh my God this is perfect," and "JFC that is so Corey. Look at that leer."

In addition to those little gems, the "this is perfect" friend and I were having a conversation and my sex life came up as a topic. She had this to say, which (combined with the picture and sentiment behind it) totally cemented my faith in my relationship and its unique power and beauty.
"You two will be fine. I personally find that sex is best with a person you already fiction well with outside the bedroom, and you two are made for each other. Inviting someone to come over and play is a unit decision, a group activity, and only works because you two are already perfect together on That level. You'll be fine."

Yep. We are perfect together, and no matter what we can make it. We are warrior-lovers! The Artist also said, "And during the time I was reading the blogs up in phoenix, I felt really sad and helpless not being able to somehow get rid of the depression and the stress that you were going. So I figure I ask this, that way it shows some happiness that it can bring about through trouble times. I mean I can choke illness out of people, but I do much best to try to create something or think of something to present as a gift through help of others such as this artist or form a gift by myself. And of course I did my best to pay whenever money I had for the sushi up when you had your doctors visit. But yeah, I am going to cry up a storm here when I keep talking like this. Anyways you have amazing friends that have your back, how about that :)."

And she's absolutely right. With the Robot/Drogo firmly ensconcing me in his arms and my amazing friends at my back, there is no way I can not kick ass as I live life facing the gremlins. My various diseases may never go away and they may never be totally tamed and managed, but I'm not going away or being tamed either. I will continue to wear my tiara to doctor's appointments and to paint my walker bright colors to cover the shame and anger I feel at having to use it. I will prevail, and I will do so with or without this elusive thing called "sleep"! For now, though… I'm going to try to catch some. :)

**Author's note: One of the new/aggravated symptoms I'm dealing with is, for lack of a better term, short term memory loss. I believe I can attribute this to the pain medication I'm on, but it does make for some interesting experiences. This post, for example, was written while I was literally falling asleep at the keyboard. It was totally coherent and even eloquent to me at the time, because I knew what I was trying to convey. The next day, when I realized that I had written a post (because I'd forgotten that I had, actually!) I came over to read it because, naturally, I couldn't remember what I'd written. I found it to be… not quite as lucid as I had thought it was. Apologies. If you can muddle through this and make sense of it, I just may hire you to be my FibroFog Interpreter. I didn't want to delete this, though, because I mean… it's my writing. A piece of myself, coherent or not. So, here it shall remain, if only as a testament to "this is your brain on drugs".**

I'm given to understand that there are many "steps" when it comes to acceptance and grieving of a chronic illness. It may not immediately seem clear as to why someone would need to "grieve" when they're clearly still alive. I mean, grieving is for when people die or you break up or something, when a relationship is lost… right? Right. However, unless you've encountered it yourself, seen it in the life of someone you know (to whatever degree of closeness), or have just thought about it quite intently, it's unlikely that anyone would understand the phenomenal amount of loss involved with a chronic illness diagnosis and the life after the diagnosis. I spoke of death just now; in a very real sense, a diagnosis of a chronic illness is both the death knell for the "old life" and the harsh squall of the newborn as a "new life" unfolds before the patient. Due to the completely unpredictable and generally misunderstood nature of chronic illnesses, though, many times that life unfolds only minutes at a time. There are no grand, sweeping vista of plans and ambitions or sweet, sleepy forests of peaceful routine followed decade by decade.

The landscape of the chronically ill and the average healthy citizen can appear deceptively similar to the casual observer. Often, the land of the ill is surveyed with a passing glance and dismissed with a nonchalant, "you don't look sick!" After all, the sun still speckles brightly along warm earth paths of smiles and laughter, mountains of various sizes and relative distances are scattered through the view, and always, always, the loud gushing streams of cool forward momentum and purpose weave and twist their way in and out of both expected and unanticipated settings. Look closer, though, and you will see troubling changes that stir up an unease within, changes that make you want to run for your life lest you be contaminated as well and your own precious world poisoned.

The straight furrows of garden plots are worn and cracked, dry with fatigue yet managing to bring forth a feeble crop. The cheerful cottages, clearly once a source of pride and sustained labor, now seem to troop sadly across verdant meadows bare of livestock. Lush banks of flowers cover crumbling masonry and low, stooped walls, draping the entire panorama in a rippling, delicate gown of every hue imaginable. The colors are a riot, but blend together to create the most intricate and exquisite of tapestries; every bloom is perfectly placed, from the single frothy Queen Anne's Lace to the tightly bunched carpet of creeping phlox, and what could have been hills barren and uneven becomes a spectacular faceted gem of pure joy.

The chronic illness world can be a harsh, ugly place. The cottages and relationships that we have so carefully labored over and constructed with our own hands through years and years of work, they often fall into some state of disrepair. Those who live in the cottages can do some of the upkeep themselves, but the true purpose of the cottages demands a synchronistic cooperation in order to truly thrive. Beyond the cottages, the near-empty fields mutely allude to the loss of hobby and gainful employment. The sweet silence of the air brings a sharp contrast to the usual sounds of looms clacking, animal noises, children squealing and squabbling; the normal sounds of a busy life have been replaced with a hollow, pealing silence that resonates down to the very bones.

The flowers though; ah, the flowers. The flowers make it all bearable, if not tolerable. The origin is unknown except to the owner of the valley, but such a rich and varied selection is found but rarely outside the landscape belonging to the chronically ill. It seems that the soil of normal lives just does not cultivate the proper atmosphere or soil in order for the plants to grow to their fullest and most luxurious. Well-groomed flower gardens can be seen among the graceful landscaping of nature itself where people have taken to cultivating particular joys and gratitudes, while others appear to be content to take theirs wild and unsolicited.

In my mind's eye, my landscape looks much like north central Idaho, or perhaps western Montana. It is rugged and choppy, coated with mountains and sheer cliffs and whitewater rivers dashing themselves ever downward. It is sparsely populated, and those that are there tend to keep to themselves and be self-sufficient-- no coddling these cottages. Practicality reigns supreme, yet nature itself inspires a veneer of beauty to soften the edges and uplift the heart. Those same rugged mountains are swathed in dark evergreen forest, underlaid with countless varieties of bush and berry and other barks. The seasons change, time inexorably marches on, and even the death that time inevitably brings wears naught but a thin, shimmering mantle, spinning and flaring in the sudden colors of Fall before the cloak is thrown aside and the naked white bones of the world come to the fore of collective consciousness.

The landscape of my illness is part beauty, part blight. Pockmarked scabs of raw gashes in the earth can be found mere steps from a tranquil, dainty pond embroidered with ferns and sweet puffing breezes. I can always find flowers to sustain me, even if it's just one, but the wanton loss, destruction, and waste that I see around me as my world crumbles… it sears my soul with a thousand putrid colors that I dare not do anything with but swallow. Every day is another Pandora's box: the lid is cracked open by morning light, the evils escape and howl through the welkin to begin their outrage anew, and Pandora slams the lid shut tight, having only hope left to herself.

The thoughts and feelings of such a continuous cycle of dismay and disappointment take a heavy toll, and the words do not come easy. They boil and roll around inside of my head and my heart, percolating all the way down to my fingertips… but at the last minute my heavy heart shakes her head and says it's too much, too much, and we're all (all of us pieces parts together) too tired to argue so we cover our eyes and turn slightly to the left, hoping that the results will scatter in the sweetly sweeping breeze. They never do, and I grow heavier and heavier as I wait for the words to finally squeeze themselves from my very pores and splash across the page. I wait for the words to write themselves, to unwrap the weighted intensity of themselves and float out into the world, because I don't understand them while they are inside of me, not really, and if I can read what they have to say about themselves then I just might be able to make some sense out of all of this. My landscape is beautiful, in its own way, but it is also terribly confusing and wickedly deceptive, and I am afraid that someday I may drown in my own confidence.

So after 2+ years of being on gabapentin ("Neurontin"), which is a psychoactive drug used to treat epilepsy and neuropathic pain, I finally decided that I wanted off. I mean, my dose had been increased several times throughout the years with still no help for the pain and too many negative side effects for me to want to take it any longer, especially if there are no benefits to outweigh the risks or negatives.

I tapered down after telling my neon pain doc that I wanted off, which she instructed me on how to do, but I was already not doing well because I had yet another instance where I was forced off of pain meds for a few days. It was a crappy week +, but then the night that I took my last dose I started feeling really, really awful. I thought it was just a bad bout of "fibro flu" at first, but as my symptoms continued to worsen and I was the sickest I could remember being in recent memory, even worse than when I had just been going through pain killer withdrawals. I told Drogo the second night when he got home from work how awful I was feeling, and how it just felt like really bad withdrawals and… then I kind of got an idea. I did some research online real quick (thinking that it may have been something to do with seratonin toxicity, which can be SO dangerous), but the only real change had been quitting gabapentin. My symptoms lined up perfectly, and I thought that I might be able to persevere at home now that I knew what I was up against. You know what I mean? It's just easier to fight a known enemy, even though I still felt increasingly worse. (And really? Going off of this med with no warning whatsoever that withdrawal symptoms were coming, much less that they'd be so virulent?! It was a very nasty surprise… but in retrospect, I should have totally seen it coming. Oh well.)

I had a doctor's appointment with my GP the next morning, and she was concerned. She wanted me to go to the ER for monitoring just because of the severity and concern connected with many of the symptoms, most importantly bad chest pain and very low (for me) blood pressure with severe and consistent near syncope upon movement. (I actually collapsed/passed out in front of CVS right after the appointment, but Drogo was there to catch me and lower me to the ground. I really gotta stop collapsing in pharmacies.

We decided not to take me into the Emergency Room because, even though insurance covers a lot of the expenses… the hospital is NOT a cheap place, not by any stretch of the imagination. Khal Drogo was stuck in a hard place, seeing me so sick and knowing that I really ought to go in, but looking at the long-term of our financial situation and just feeling that, well, we can't swing it. Ever watch Cinderella Man with Russell Crowe? He finds himself in similar situations as he struggles to feed, clothe, house, and keep his family healthy in the midst of the Depression. It was not easy to watch Drogo wrestle with the decision… it hurt me to watch him have to make such a terrible choice.

A few hours after my appointment, however, I was still worsening, and fast. I texted mom and RDad to tell them what was going on, mom called RDad, and Rdad called Drogo to tell him that finances weren't a concern. Get me to the hospital. The timing was great, because I had just texted Drogo from the bedroom saying that "I am getting worse, and I don't know how much more I can take." I broke down crying about that point, because while I deal with a great amount of pain on a regular basis I am also worn down from doing that for so long without any significant relief at all. The "regular" pain combined with the awful withdrawal symptoms and pain was just too much for me, and so on the 3rd day of withdrawals I ended up in the Emergency Room. I hadn't been able to eat hardly anything the past few days, and that morning I'd only had a small applesauce snack cup, so I started getting pretty ill from not being able to eat while in my ER room in the back. In addition to that, I wasn't allowed to take my own meds and so the time for pain killers came and went… and my pain (a 9.75 when I came in to begin with), skyrocketed. I finally fell apart after a few hours, especially after having to get up and move around for x-rays, and I started sobbing and wailing uncontrollably which lasted for an hour or two before I was given something that took the pain back down to manageable (about 9.5 again).

Yesterday was kind of a blur, but I know I was eventually admitted and I haven't broken down crying since. The pain has been bad, don't get me wrong, but below a 10, and I am okay with that!! LOL. During initial triage, the nurse that was trying to take my blood and put an IV in just wasn't doing a good job somehow. The tourniquet hurt like nobody's business, driving my already high pain up, and then she was digging around with the needle and tapping on it for over a minute before I told her to just use the other arm. I couldn't handle the tourniquet pain any longer. She hit a nerve (twice!) as she pulled out and I couldn't help but scream and start sobbing again. I actually blacked out for a split second because it hurt so badly. It startled me.

I've had some great nurses, though, and the doctor who saw me was good. Professional. Friendly, but genuine. He's keeping me overnight again, since I'm still so symptomatic and not doing well… sending me home would not be a good idea right now. I feel much safer and way more comfortable here, with regular medicine application, constant saline drip in my IV, nausea meds, and a type of synthetic opioid, methadone, that is actually used in detox programs for opioid addicts. My pain is still hanging out in the 8-9 level, but that's "normal" for me anyway, and my pain is being aggravated by all the other stuff so it's not a big surprise. I'm getting the methadone and tramadol, as well as IV solu-cortef, which is what's in the "stabby stabby" that I have to administer when I get into an accident or whatever to avoid adrenal crisis. It is more potent than the tablets I normally take, and I can feel it keeping my body more relaxed and stable. It's nice. I thin that was part of why I "collapsed" in the ER as well, because my adrenals were shorting out or whatever on top of everything else. I wasn't allowed to take my meds, remember? It was a nightmarish afternoon. I can legitimately say that I have not been in that much pain before in my life, except maybe in small, short bursts. I was waiting to pass out from the incredibly high pain levels and my utter fatigue (especially after sobbing uncontrollably for a prolonged period of time, and being so weak to begin with when I was brought in-- couldn't walk, could hardly sit up at all).

So… it's been a fun adventure. I feel awful, yes, but not as awful as I would if I had just tried to make it at home. I mean, I did try, and I made it as long as I could, but I just kept worsening instead of stabilizing or improving, and there's only so much a person can take, ya know? I'm so grateful for the intervention of Mom and Rdad on my behalf. I'm honestly and genuinely glad that I was admitted and that I'm being taken care of. This has actually done a fair deal toward improving my totally bleak perception of medical care here in my town, and in the hospital/ER in particular.

I haven't been able to sleep more than 2 or 3 hours since I've been here (or even the day before), and I keep waking myself up with dry heaving when I do manage to fall asleep, but I'm going to maintain a valiant effort to crash the heck out. I'm SO. TIRED. Hah.

Before I go tho, let me take a selfie… LOL. I figured I had to commemorate such a momentous event. Plus my hair looks freaking fantastic, rolling around in the hospital bed this whole time :D

How's my pain? It's over 9,000! LOL

Look! I'm a fall risk! First time for that… means I'm not allowed to stand up on my own.

A whole breakfast tray of… nothing I can eat. I learned how to order whatever "safe" food there was before my tray gets brought up pretty quick, and Drogo has been bringing me safe food from home so I can eat little bits when I'm hungry. Still can't eat much yet, abdominal cramps and nausea too bad.

But they gave me Sprite! Rock on, nurses.

Peace out, homies and fellow Spoonies. May your spoons be plentiful, and take care of yourselves, yeah? I'll stick to doing the same over here.

A friend of mine, The Artist (as I will call her from now on) took it upon herself to draw me a picture since she figured that my spirits might be down lately since I've been really suffering this last month. She's right-- if you've read my blog at all in the past week or so you can see that I'm really going through an existential crisis type of depression, so this picture really cheered me up.

At first I loved it just because it's so adorable and it makes me smile every time I look at it, but then she explained the meaning that she put into the little details and I love it even more. I wanted to enshrine it forever with the meanings behind it, and this is the perfect medium to do so. First, here's the picture.

Here's what she says about the picture:

I thought you might have been feeling pretty down, so I figure I get back to my drawing board for some inspiration. And I drew you in a renaissance spoon warrior.

I mostly worked hard on the spoon and chest armor. I put a lot of meaning to your outfit and spoon weapon.

The chest armor with the tree symbolizes your family tree. Its braches represent your family and the family that you stayed with. No matter how far the braches spread a way from eachother, the roots will always indicate how much of an impact your family is towards you. The handle of the sword is the tricky part. I places a picture of a heart and a cross to represent the people that you have lost, but give you strength to carry on. If you look carefully you'll see a small vine of a plant (I think is name was David?) and a small crown for the "Chem princess" I think that is her nickname. The handle gives you the grips to carry your burdens and to help you move forward. Lastly, The staff of the spoon blade has writtings on it. They are the vows that C have to you on your wedding day, though I change the words from English to Irish, so it looked cooler and no to obvious of what I was doing. It represent of course how much he means to you, but gives words of strength and comfort.

I figure just an ordinary spoon didn't give it much justice, so I did my best to make it meaningful

I love it. I love it so much. Thank you, Artist, for this beautiful and unexpected gift that warmed my heart and lifted my spirits. I treasure it.

What is it about death that makes us grieve? It can't be any kind of concern for the well-being of the one who passed away… Well, ok, maybe it can if you believe in hell and heaven and those kinds of things. But really, they, the deceased, are done. They aren't hurting, laughing, crying, missing you… any of those things. In the case of my beloved Chemo Princess, she's not sick any longer. There is no more fight to endure.

I think grieving is a selfish thing. It's not about them, it's about us. How much we will miss the person, how we feel cheated and robbed of the opportunity to build further bonds and create connections with that person… but that's okay. I mean, we all know it is so unhealthy to lose someone and not grieve. Our lives are pretty inherently selfish, anyway, no matter how selfless we try to be. Even the act of losing oneself in service to God is a very gratifying act for the individual. Those who indulge in self-flagellation to make up for supposed wrongs or to score points with God do so out of a motivation of self… a desire for security, eternal or temporary.

Then again, maybe that's why death is so hard. We opened up our selfish little spheres and brought someone else in. We connected with them, we made ourselves uncomfortable for them at times, we let our lives be about something other than us… and now that's gone. Now we're just a little more selfish than we were… or are we? Does it take a living person to form a connection? Does that connection just vanish once the person is no longer breathing, once the heartbeat stops? I don't know. I don't think so, though… Although no further connections can be made, really, death cannot erase what was. As long as one of you is alive and remembering, the connection stays.

Memories. A way to live on after dying. And what a fragile place to live… memories are so delicate, subject to change and repression and fabrication… But isn't it strange that you can make new memories with someone who doesn't live any longer? I know J created a set of new memories with her father D at her wedding, even though he had been gone for months. But she brought him into the event, and there he was. The plant that I brought home from his memorial… it thrives and blooms like nobody's business. I still have that connection to D with his plant, but he doesn't know it. I do. I am making memories with… a plant… but also with D, because I have connected it to him in my mind, therefore he is still a part of my life.

Our minds are strange places. So are the plains of our soul, littered with emotions, the topography constantly changing. You could get lost inside yourself and never make it back out.

It might be pretty plain by now that the Chemo Princess hung up her wand and tiara. Last night, in fact. I felt no disturbance of the Force, no sudden sadness… but I do today. I grieve, knowing that we will make no new memories together. Knowing that her husband no longer has a wife and her children no longer have a mother… at least, not one that can interact with them any longer. I rejoice because she isn't sick anymore. I rejoice that she is done with pain. I rejoice that she fought hard and well and no longer has to be a warrior. But I also grieve… because she was the warrior I looked to for strength. And if she's gone, how will I keep fighting? I am also feeling some twinges of anger. Yes, I am angry… not that she is gone, but that she is gone and I am still here and sick and have to keep fighting for I don't know what reason… simply because those around me would be sad if I died? What a reason to fight… it's both laughable and honorable. I am angry because she gets relief and I don't. I am angry because this is the second amazing human being with SO MUCH to contribute to the world that has been lost to cancer inside of a year out of those that I love. I am angry because she had a specific enemy to fight--cancer--and I don't.

She and I were kindred spirits. Hippies, lover of good music, theater, sparkly things, tie dye, gypsy wagons… and now I must carry on alone. I have lost a comrade, a mentor, a friend… and I am grieving.

Even in the midst of her battle, she is beautiful.

The family's message of love and support for the Chemo Princess about a year ago.

I know I've probably put these up here before, but they just keep coming back around and meaning so much to me… especially when I'm having a really hard time for one reason or another (like this one, which is entirely not my fault).



But now the current's only pulling me down
It’s getting harder to breathe
It won’t be too long and I will be going under
Can you save me from this?

Cause it’s not my time, I'm not going
There's a fear in me, it’s not showing
This could be the end of me
And everything I know
But it’s not my time I'm not going
There's a will in me, and now I know that
This could be the end of me
And everything I know
Oh, but I won’t go
No, I won’t go down

I look ahead to all the plans that we made
And the dreams that we had
I'm in a world that tries to take them away
Oh, but I'm taking them back
Cause all of this time I've just been too blind to understand
What should matter to me
My friends this life we live, it’s not what we have
It’s what we believe in

Give em hell, turn their heads
Gonna live life 'til we're dead.
Give me scars, give me pain
Then they'll say to me, say to me, say to me
There goes the fighter, there goes the fighter
Here comes the fighter
That's what they'll say to me, say to me, say to me,
This one's a fighter

If you fall pick yourself up off the floor (get up)
And when your bones can't take no more (c'mon)
Just remember what you're here for
Cuz I know Imma damn sure

This video I watched this morning perfectly illustrates what I was talking about yesterday, about meeting myself and not defining my worth or capabilities by my appearance. It's definitely, definitely worth a watch.

Sometimes it all just comes crashing down on you and you just need to cry. At least, that's how it is for me. Funny thing is, C has this freaky sixth sense and somehow always just knows when I'm crying, no matter how quiet I think I'm being. And he always comes to find me. Once or twice I've been crying while he's asleep and he woke up to wrap his arms around me and cuddle me. He didn't remember it the next day, though, which I find amusing.

So I was crying in the shower/bathtub in the wee hours of the morning because I couldn't sleep due to so. much. pain., and because I was just so frustrated with my health and how out of control I am of so many things (all traceable to the fact that my health has gone down the crapper and there's nothing I can do about that beyond what I'm already doing) and I hate that I'm gaining weight and can't do diddly squat about it and I'm terrified that C will no longer find me attractive and will be unhappy in our marriage and we'll both just be sad and upset and live these lame lives because I'm sick and fat and sad. I know, I know… silly, right? But when you're hurting very badly and it all just seems so frustrating and unfair, logic seems to step outside for some fresh air and a cigarette break.

I got to thinking, though, as I was sniveling away in the tub, that my appearance is so not all there is to me. I thought about my friends and all the good they see in me, and how they're not friends with me because of my rocking cleavage (although that does help, so I'm told) or my fabulous cheekbones. I started to wonder, what would I think about myself if I were someone else meeting me for the first time or getting to know me?

Here's something a new friend of mine sent to me via a private message on Fb. (I hope she doesn't mind my sharing!)
"I just want to tell you that you're absolutely stunning! Your positive energy and the care I can see you have in you for others. I admire it don't pay attention to the numbers on a scale or douchey doctors! It pains me knowing they don't know what's wrong with someone so kind who doesn't deserve all the mayhem your body is putting you through! Keep a smile on you face because someone is always paying attention to it < 3"

If I were getting to know me, I think this is what I would think. I would think that this person is…

• Funny. She laughs a lot and likes to laugh with others, not at them. If something can be made into a joke, she'll go for it, and she often finds little humors in every day things.
• Smart. She is well spoken, well written, has a large vocabulary, and "has a mind like a trap" according to D. She likes to collect obscure tidbits of knowledge and is fascinated by etymology.
• Kind.
• Giving. She loves to give to others in whatever capacity she can, however little it is.
• Compassionate.
• Stubborn.
• Creative.
• Strong and determined. It takes a special kind of person to withstand those levels of pain and still be able to laugh, smile, and care about other people.
• Ambitious. She has big plans for her life and making the world a better place.
• Talkative. Especially during movies.
• Neat and tidy.
• Sensual. Takes pleasure in the signals received by her senses and in things that bring physical pleasure.
• Has a large, bright smile.
• Thoughtful.
• Skilled at many things. Writing, cooking, creating, interpersonal relationships, attracting and entertaining small children, etc.
• Wise. An old soul.
• Open to growth and learning/Teachable. All this, despite being stubborn.
• Emotional. This is not a weakness, and not a shame.
• Highly relational.
• A nature lover.
• Persistent.
• A lover of the aesthetically pleasing. This goes hand in hand with "sensual".
• Exuberant. Often described as "vivacious", "vibrant", and "bubbly".
• Honest. Hopefully tactful as well.
• Committed.
• Good work ethic.
• Sensitive.
• Loving.
• Encouraging.
• A bit clumsy. Minor injuries are inevitable.
• Responsible.
• Too hard on herself.
• Insecure.
• Authentic.
• Eloquent.
• Adventurous.
• Loyal.

Frankly, this sounds like the kind of person that I'd want to be around, and that I'd want in my life in a big way. Like, she sounds amazing…and none of those qualities and quirks and personality traits that make her amazing have anything to do with appearance. None of them. If I knew a person like this (and I do, actually!), they could be "ugly" according to society's current standard of beauty…but they would still be a desirable person. They would radiate an irresistible quality that would make them attractive on such a deep level that the superficial physical traits would resolve themselves into a beauty of their own. Think about it. If someone is just so wonderful and lovely from the inside out, you find things about them that are attractive, do you not? One day while you are sharing a hilarious joke, you notice the curve of their lips and the slight dimple to one side. As they look deep into your eyes while sharing your pain, you notice the rich and intense color that is only enhanced by the sheen of their sympathetic tears. During a hug, you notice the strength of the muscles rippling in their back, the graceful taper of their fingers and the suppleness of wrist as they hold your hand.

People can be beautiful aesthetically, but a flat, displeasing, or grating personhood will strip them of all attractiveness. All that is left is a lovely shell. Useless. That is not me. My aesthetic beauty has changed, to be sure. I know that I am still attractive, but I do not align so closely anymore with the standard of beauty that is vaunted in our culture at this point. I need to come to terms with that, and to realize that it really is not the most important thing. As I look at the list above…what I would see upon meeting myself, getting to know myself…I find myself very attractive indeed. Or rather, I would if I saw those same things in someone else. It is still so hard to be friends with myself! Step by step, though… I'll get there. Why? Because I'm persistent, and loving, and committed, and kind, and...

Oh good grief.

I thought I had written a post the other day, but it turns out that I wrote it in my head and never actually typed it up. That happens more frequently than you'd think. Most of my thoughts vanish into the vapor without ever seeing the light of day, and considering how much I talk and write you can see the volume of thought that is constantly pouring through my head!

First of all, my husband is a fantastic support for me. I broke down when he got home and cried (of course) and ranted (naturally) and even went so far as to accuse him of not being supportive of me. I immediately apologized, and he accepted it graciously. He held me close and said, "Well, you're angry. It's ok." And you know what? He was right.

I hadn't realized that I was angry. I am angry. I'll have to explore that more in depth later, but I am angry. I'm angry with my doctor for not taking me seriously and not pursuing adequate testing and treatment options for me, for letting me get to the state of health that I'm in without really apparently trying to prevent this rapid decline, or even believing it. I'm angry that I hurt all of the time. I'm really angry about that. I hate it and I want it to stop. I hate that I'm losing the use of my arms and hands, and that I had to get a friend to drive me to my doctor's appointment because I couldn't lift my arms and I was twitching all over. I'm angry that, despite "treatment" and stronger pain killers (that I'm taking as prescribed!!) I'm still in so much pain that I've cried every day this past week.

Anyway, I then proceeded to vent some more, and we cuddled, and he affirmed me on my physical appearance as I requested, and all was well. Earlier that day I had practically crawled to my friend's pawn shop to take advantage of a dollar sale for Christmas gifts, and I spent about an hour there talking and laughing with two of my friends. It was definitely a mood booster, and even though I felt little better physically my spirits were lifted. Then when C came home and I was able to just explode with the pent up emotions I felt so much better. I was actually laughing and joking lightheartedly by the time I went to bed even though I still hurt badly.

Support systems. They're what will keep you going when you can't go any longer on your own. J, C, E, the M's... They've got my back. I'm so, so grateful for friends that carry me when I don't even have the strength to twitch.

*POSSIBLE TRIGGER WARNING!!*

I discuss my abuse in this post, not in a graphic nature, but it could be triggering for some folks.

So next week (if the gov't shut down doesn't interfere), I'm going to be giving a talk on domestic violence at the Marine base here in town. I haven't been in a domestically violent relationship myself, but I was raised in a dv home setting, so it definitely affected me. I'd like to share my talk here, complete with pictures, because C doesn't want to hear it. It's not that he doesn't care, it's that it upsets him too much to hear the actual story. I've told him everything, and he's compartmentalized it away, but he doesn't want to hear it again. It makes him very angry, and there's nothing he can do about it, so it's better to just not say. (That's not to say that he doesn't listen when I need to talk, but outside of that... I pretty much keep "work" away from our conversations, except in a general sense.) I'm really proud of him for coming along and supporting me during the trial. It was very hard for him to hear all the sordid details and to actually see G, to see me up on the stand and to watch me get cross examined by The Snake. He's such a good guy. Fun fact: he saw G at work while he was in the county jail waiting to be transferred to the state prison, and had to ask to be transferred to a different unit to work. Conflict of interests, you see. He might pulverize the guy. Heh. (Not that any of us would have minded, but they generally frown on that kind of behavior from officers...)

So anyway, here's the talk I'll be giving next week. It's not word for word, really, but I wrote down the story.

Recently married, co-running non-profit agency. Emotionally healthy and stable, have many fulfilling hobbies, a solid support system, and several close, meaningful friendships. Also have two cats. Looking at me, you’d think I am a happy, successful young woman with a bright future, and you’d be right. This was not always the case.

Teen years and early twenties: intense depression, uncertainty, paralyzed by fear of failure, low self esteem, delinquency, risky behaviors, suicidal thoughts, escapism, no sense of self, directionless. Felt responsible for family and mother, yet a failure. Codependent, dealing with PTSD unaware, zero boundaries, unrealistic expectations for self and others.

Very few safe people in life, one of them being now-husband, C. Met at 15, began dating later that year. Kept me safe and on the straight and narrow as far as he could- got me to work and school, kept me from drinking and drugs, from unsafe situations and friendships.

Another safe person E, met after disclosing childhood sexual abuse at age 17 and pressing charges. She was my victim advocate and maintained a friendship with me after my abuser received a conviction and the case was closed. It was while preparing for trial and telling the details of my childhood to her that I first began to realize that what I and my family went through was not normal, and was in fact a terribly abusive situation.

 Some of earliest memories are of being physically abused, but by a different man, my younger sister’s father. He was extremely abusive to my mother as well, and almost killed her at least once. One incident I remember clearly is the time that he placed me inside of a heated oven, resulting in burns on my back that required a doctor’s attention. Another time, he tried to force me to drink urine. On multiple occasions and for reasons I can’t remember, my mouth was stuffed with wadded socks. I was somewhere between 1 ½ and 3 years old. He was not the only abusive presence in my life- physically and I suspect sexually abused at day care, and in one abusive temporary home after being removed to foster care when the domestic violence situation with mom and my sister’s dad became apparent.

Mom got custody of me back and we moved to Y, where my younger sister K was born. We had a year or so of peace until my second abuser entered the picture. I was afraid of him from the beginning, as something about him triggered an innate sense of wrongness. Nevertheless, Mom got pregnant with my younger brother and married him.

I do not recall seeing him beat her the way he beat me after a while, but he did make her life hell in many other ways, such as forcing her to pack and move all of the household goods and furniture right after she got out of the hospital from delivering my brother and was suffering from a severe kidney infection. He refused to go to work frequently so my mom worked as much as she could to keep us in food and clothes, but he took most of her money to spend on his own hobbies. She had a secret stash of money for groceries that only she and I were privy to. He ignored us kids unless he was high or wanted to impress someone, and he pretty much ignored mom as well. When mom was working and he was supposed to be caring for us kids, the duties fell to me and I became the secondary mother of the home. 

This role was exacerbated even more when he began coming to my bedroom around age nine and molesting me. Years later, when I confronted him via phone call, his excuse was that he and mom were “having problems”.

His parenting style was erratic and wildly unpredictable, often meting out excessive punishments for trivial offenses that hadn’t been offenses previously. I bore the brunt of this, being the oldest, and the punishments ran the gamut from isolation to beatings (excessive “spankings” that brought heavy bruising and bleeding welts) to food deprivation. He acted as a grown child, with petulance and unrealistic demands of all the members of the family, favoring or ostracizing on a whim. 

In one instance, he returned from a trip with the three younger children and announced that he didn't like my younger sister and never wanted to take her on a trip again. I believe that she internalized this message, as her previously loving, outgoing nature changed drastically from that time on and she became sullen, withdrawn, and painfully unsure of herself. She has spent her dating years emotionally promiscuous, dating younger men who tend to idealize her and put her on a pedestal but who have serious emotional problems themselves and required her affection to fuel their self worth. She was in a long term domestically violent relationship (unbeknownst to the rest of the family) that resulted in the first grandchild.

As for myself, these formative years in such an emotionally, mentally, physically, and sexually abusive environment seriously warped my sense of self, my perception of healthy relationships both romantic and non, and my ability to cope with life stressors. In many ways, I was still the toddler and the child who did not know how to handle life or relate to the world around her, because I was denied the opportunity to learn these things. Instead, I was taught that I didn't matter, that what I said had no value or weight, that the mistakes I made while learning something new were to be punished and thus to be avoided (so trying new things was to be avoided, for fear of making a mistake), that words and promises are not to be trusted, and neither are actions. I learned to mistrust and fear authority figures, to accept violence and manipulation as a part of everyday life, and to believe that women and children are inherently inferior to men, especially men in positions of authority. I learned to keep secrets, to keep quiet and clean up the messes of my dysfunctional family rather than seek help for genuinely distressing situations. I learned that I do not have the right to say no to anyone, no matter how outrageous the claim or the imposition on me. I learned that I was helpless, always helpless. I learned to give up before I even tried. I learned that I was only as good as my contribution, that my acceptance or rejection depended on it. I learned to be a piss-poor member of society.

This is one of the great problems with domestic violence; it doesn't just affect the women or men in the abusive relationship. It fundamentally changes the children who witness it, who live with it day in and day out. Society is built on the backs of the family unit, as it is the family unit that produces the citizens who make the world go round. When the children are taught false and damaging “truths” about themselves and their relationship to those around them, they will grow up to act in negative, damaging ways. They will not respect laws or those who make them. They will not treat people with courtesy and respect. They will not build up, but they will tear down. Why? Because that is what they are taught is “normal”. That is what they see as being the basic model of the world.

I  was raised to be a victim. I didn’t go out and hurt others, but I was the one that allowed myself to be hurt. I was part of the perpetual cycle, because wolves only survive if there are prey to devour. I didn’t understand why I always felt so burnt out, how I kept getting screwed over and hurt, why I felt so paralyzingly guilty that I couldn’t say “no” to anyone. I didn’t know why I felt like such a fake all of the time, why I didn’t know who I was or felt that I was always pretending. I didn’t know what a personal boundary was. Literally, I didn’t know.

It wasn’t until I moved to Id and lived with a family there for several years that I began to understand how a healthy family functions. They had struggles and flaws, like any normal family, but they truly were a healthy, functioning family unit. It took quite a bit of adjustment on both our parts to get used to the arrangement- I didn’t know how to relate to a real family, and they didn’t know what to do with a girl who didn’t know how to be in a family! But we ironed out the wrinkles, and as I began going through counseling and intensively focusing on healing from my past of abuse, I began discovering emotional health and, more importantly, the real me. 

I grew and I thrived within the cocoon of that family, but the time did come for me to leave. I moved back here to Y, supposedly temporarily on my way through to CA, but I ended up staying as I got involved with The Healing Journey and in a relationship with my husband. I’ve continued to intentionally heal from the abuse that I suffered and grew up around, and part of that is using what I’ve learned to try to help others. I know that there are people in the world who make bad decisions. That’s not going to change. So I know that there will continue to be people that abuse other people. What I hope to do is help those who have already endured abuse to heal and become stronger, as I have, and in the process remove some of the people from that pool of possible offenders. 

It’s more than just working with The Healing Journey, though I adore my job, as hard as it is. To me, the most important thing I can do with my healing is to help my family. My ex step dad is behind bars, and I’m proud to say that I put him there. He deserves every year of the prison sentence that he got, and some more on top of that. But my mom was also abused, by him, by my sister’s dad, and by her parents and others before them. She is broken, too. My siblings grew up in the same household that I did, and they are broken. Through my urging, they’re all getting counseling now, and I share with them what I’ve learned when I can. When I go home to visit, we talk, and they can see the growth and healing in me. The ways that I interact with them have changed. The ways that I respond to them have changed. The way I think about things has changed. But most importantly, the thing that gives them the greatest hope for their future is my marriage. 

They’ve seen my mom go through one bad relationship after another, and, like I was at one point, have become cynical about the possibility or reality of a truly happy relationship. They see that C and I have done it, we’re making it, and we are genuinely happy despite the different setbacks that we deal with. I’ve had conversations with all of my siblings, and even my mother, at one point or another regarding my marriage, and they all express hope that they can have something like that someday. Even our friends say that. I make sure to emphasize to them that what we have is possible because we both insist on being happy and healthy within ourselves first and foremost, rather than looking to the other person to fix us or make us happy.

I think the thing that makes me the happiest is knowing that my children will never, ever have to experience what I did, or even my husband to a lesser degree. My children will not live in uncertainty and fear, will not nurse bitterness and hatred within themselves over very real injustices. My children will grow up in a steady, safe home filled with loving discipline and genuine acceptance. I honestly don’t know what they’ll turn out like, because nothing in my experience has prepared me for knowing the outcome of living in a home like that, except for my few brief years in Id. But I do know that my kids will also be very aware of the issues of domestic violence and sexual abuse, and that they and all of their friends will know that our home is a safe place for anyone to come to. So maybe my ex step dad tried to destroy my mom and our family, but it is possible to take destruction and turn it into a gift, if only we are brave and just plain stubborn enough to do it.