Showing posts with label bravery. Show all posts
Showing posts with label bravery. Show all posts
Today is definitely a rest day. I've been napping up a storm the past week or so, especially since I had that really rough day without the meds. I've spent the last few days trying to recover from that, but I pushed it too hard and went down yesterday. The awards ceremony really took it out of me, and yesterday when I met up with E for a lunch meeting followed by work, I almost passed out in the restaurant. I was soooo sick.. apparently I went whiter than a sheet, and I barely made it out the front doors to the car. I had to leave my car there while she drove me home, and needless to say we didn't get to work that day. (No paycheck this week. Bummer.) She called me today, worried like crazy, but I assured her that I am alright. Apparently she had a panic attack on the way home, she was so worried, and she was talking about it with her husband (who adores me like I'm one of his own, and I totally love him too). Poor E. I did just what she said and rested as soon as I got home, though. I spent the rest of the day in bed feeling pretty lame after sleeping a few hours, and I've done the same today. Just woke up from another 4 or 5 hour nap. Sleep is nice. It keeps me from hurting while I'm doing it lol. Also, I haven't been sleeping well due to nightmares and increased pain at night, so I often wake up after a few hours, stay up with C until he goes to sleep, then crash out again with him. It's nice to be able to spend so much time with him, though!

I sincerely hope that this passing out thing is just a fluke, a product of overextending myself and using up all of my resources, rather than a new symptom come to torment me. I've been struggling with lightheadedness and fatigue for some time now, but this is new... and really, really unpleasant. Truth be told, it's terrifying. I'm scared to leave my house now. What if it happens while I'm driving? While I'm out and about on my own? Bad enough that I never know when a twitching fit is going to strike, but now this? I'm scared that it's a sign that my body has taken another step on the road to breaking down. Maybe I'm a hypochondriac, but dysautonomia was the first thing that came to mind. Of course. lol. But then, how can you not be a hypochondriac of sorts when you don't know exactly what's wrong with you and you've got a whole buffet of symptoms at your disposal that could point to a bagillion things? Yep. You just roll with it and keep your fears to yourself... and then spill them onto your blog. Heh.

I broached the topic of guilt with E while we were driving home yesterday. She put me in my place for even daring to compare her sickness and mine, vehemently stating that she deals with a different illness with different symptoms and she has to take care of herself in different ways. She said there was nothing to apologize for when I told her that I was sorry I couldn't work and that I was sick, and she told me not to ever apologize for that again. I love that woman. I explained to her my guilt about her working so much and being so sick, yet I can't/don't/won't. She just shook her head and said that she has to see the HJ grow. I brought up my theory about that being what she has to do to survive, but it's not me.. and she kinda agreed. Like, the HJ is her baby. In the big picture, she has to see it grow and flourish. It is necessary to her personal well being, even if that means putting up with sickness in the meantime. I want to see it grow and flourish, too, but it's just not the same. And so she has to hid her sickness in a way that I don't have to, because she's being watched by certain people and agencies in the community and they will strike at any perceived weakness. One thing I do know, though, is that she would be far sicker without me. I help her a ton, and we help support one another. We hold each other up. So my guilt is alleviated. We both survive on our own terms, and mine isn't wrong... just different.

On a happier note, J officially booked the ticket that will take me to her family's home so we can spend Christmas together! Bwaaaaaaah! I'm so excited. We haven't seen each other since... since... like, spring of 2012. It's been a year and a half, abouts. Far too long. But distance cannot separate the hearts of true roommates! Haha. Anyway, her parents are being super generous and buying me a ticket to fly out there, then she and her mom and I will drive back to Y and drop me off before they continue north to see J's uncle and J flies back home. I still am having a hard time absorbing the reality of this. I mean... that is so incredibly generous and kind of Uncle S and Auntie C. I just... wow. Wow. Like, what did I do to deserve this? Makin' their daughter happy, probably. lol.

Coraline has become quite brave and comes into C's man cave with no trepidation, rubbing up against C's computer chair and accepting petting from him. This, from the cat that fled to the other end of the house at eye contact with him just a week and a half ago. It's because she and I bonded well, she trusts me, and so when I "lured" her into C's room while he was in there she trusted that it was ok. After the initial exploration of trepidation, she's a bold little bugger. Her favorite new toys are a pink eraser and a white board eraser. She plays with those things with such ferocity and focus... it's adorable! I am keeping both kitties inside today, though, especially Coraline the black. People do sick things to cats on Halloween, especially black cats. I'm sad to say that this is the case, but you just work with the reality you've got.

I made a tentative friend through an online forum, and C and I are going to meet her for the first time tomorrow. I've been looking for female friends in my community, since most of the friends I have are guys, and all of my good girlfriends are eons away. I'm lonely for ladies. However, it's not like I can "get out" and make friends, so I am cautiously trying the internet. Taking C with me is a good precaution, I feel. I have a good sense for creepers and so does C, so if anything's off the odds are that we'll notice. Plus we're meeting in a public place, so that's much safer. I hope it pans out! As much as I'm an introvert, I do miss having friends over just to chill now and then. I kinda wish I was well enough to do something for Halloween. I miss dressing up, mostly because it's fun and I love the theatric, but also because of the social aspect. If I were feeling ok, I might even try a bar this year, just to see what all the fuss is about. Not like I can drink anyway. But eh... I'm going to keep the porch light off, ignore the knocks. We didn't buy any candy, and I do not have the energy to get up and down answering the door every few minutes. I wish that I had The Nightmare Before Christmas to watch, though. I love that movie... C hates it. He and his brother are both super freaked out by claymation. Funny fear, right? Anyway, today's the perfect day to watch, especially with C at work. It's a family favorite. I have so very many pleasant memories associated with that movie... very nostalgic. I like nostalgia.
This is one of my "fighter" songs that I've come across. I love it. Can't play it enough right now.




You can be amazing
You can turn a phrase into a weapon or a drug
You can be the outcast
Or be the backlash of somebody’s lack of love
Or you can start speaking up

Nothing’s gonna hurt you the way that words do
And they settle ‘neath your skin
Kept on the inside and no sunlight
Sometimes a shadow wins
But I wonder what would happen if you


Say what you wanna say
And let the words fall out
Honestly I wanna see you be brave


With what you want to say
And let the words fall out
Honestly I wanna see you be brave


I just wanna see you
I just wanna see you
I just wanna see you
I wanna see you be brave


I just wanna see you
I just wanna see you
I just wanna see you
I wanna see you be brave


Everybody’s been there, everybody’s been stared down
By the enemy
Fallen for the fear and done some disappearing
Bow down to the mighty
Don’t run, stop holding your tongue

Maybe there’s a way out of the cage where you live
Maybe one of these days you can let the light in
Show me how big your brave is

Say what you wanna say
And let the words fall out
Honestly I wanna see you be brave

With what you want to say
And let the words fall out
Honestly I wanna see you be brave

Innocence, your history of silence
Won’t do you any good
Did you think it would?
Let your words be anything but empty
Why don’t you tell them the truth?

Say what you wanna say
And let the words fall out
Honestly I wanna see you be brave


With what you want to say
And let the words fall out
Honestly I wanna see you be brave


I just wanna see you
I just wanna see you
I just wanna see you
I wanna see you be brave

I just wanna see you
I just wanna see you
I just wanna see you
I wanna see you be brave

I found my Never Shout Never cd, and I've been listening to it today. Isn't it funny how a certain cd or song can evoke such a strong memory of a certain time, or a set of emotions? I first heard the cd when I was home this last Christmas visiting the folks, and I listened to it incessantly the whole time I was there and for the next month or two.

What comes to mind is bravery. My friend L had just begun another very aggressive battle against her cancer, and Mom and I really got into the Bring the Bling thing to encourage her. I drew a lot of inspiration from her and her fight, because I had just been diagnosed with fibro the month before, and I was still reeling, trying to figure out my new life and this addition to my identity... not to mention struggling with intense pain before I ever got painkillers.

I was full of bravado, hope, and optimism, despite my fear, uncertainty, and pain... and that's what comes up when I listen to this cd, especially this song.

Incessant pain has a way of wearing you down over time. I was brave then, but I hadn't lived with this for as long. I'm still brave, but in a different kind of way. The fresh young soldier is filled with vigorous bravado; the weathered veteran has a worn, hardened bravery. Neither are wrong, but they are very different.

I'm still trying to figure out how to live with the pain and the host of other symptoms that accompany it. It's a day by day process, and sometimes I don't want to do it anymore... like today. I wanted to give up, get out somehow... but the only way out when pain is your life is to quit life altogether, and while I may be desperate enough to contemplate it, I'm not desperate enough to carry through. There is too much that I love holding me here. Too many people that I love, to be specific. If I weren't selfishly hanging around to take in all that love, I could still say that I wouldn't want to betray their love and trust by leaving of my own volition. Either way, I've gotta keep going, if only for the sake of the love and support that is showered upon me on a regular basis.

I spent a good portion of this morning crying on the couch, defeated and discouraged. After some time, I crawled back into bed with C, who partially woke up and wrapped me in a sleepy embrace. He just held me for a very long time, and it was what I needed to calm down and stop sobbing silently. I realized (again) that he does want me here, he does love me... I am valuable to him, even in my current condition.

So, tomorrow is a new day. Here's hoping I'm brave enough to face it with a smile on my face.