I saw the neurologist today. While he is more skeptical of fibromyalgia than I'd like (it has no objective test to prove its presence in a person), he seems to know what he's talking about when it comes to other things. In addition, he's friendly and laughs easily, so I will stick with him, at least for now.
When I told him about the twitchies, he immediately began asking questions. He feels that many of the things wrong with me are puzzle pieces, including the fibromyalgia. Indeed, there are several diseases that fibromyalgia mimics the symptoms of, so in reality I could not have fibro at all, but some other disease. Isn't that interesting? So I'll be getting an MRI, an EEG, and some electrical testing in the next few weeks, to see what's going on with my nervous system. Honestly, there are several suspects that we are trying to see if we can rule out, and MS is one of them. Many of the symptoms of MS are the same as fibro, and the twitchies are definitely of a neurological origin, so it's a suspect until we rule it out. Lupus is another. Basically, we're looking at autoimmune causes it seems, although he agrees with me that the big accident back in '06 may actually have something to do with my nervous system dysfunctions.
Other than that, life's been pretty calm. I've had a few more instances of grieving D, but I know it's normal and healthy, so I just go with it and cry it out. C will often hold me while I cry, which is nice.
Have I mentioned lately that I love being married? The more time passes, the more love I am filled with for C, and the more gratitude wells up and overwhelms me. I am so grateful that I chose this path for my life. I am filled with more satisfaction and happiness than I have ever had in my life. My time in Id was very fulfilling, and comes a close second, but the work I was doing to heal from my past adds an element of discord and instability that is lacking in my current life. I have stability, for the first time in my life. Real, honest to goodness stability. I have C to thank for that. He is a Mr. Steady, that's for sure, and he works so hard to make sure that all of our ends meet. I know I can trust him and rely on him to care for me... and our children, eventually. I love that man, more than I thought I was capable of, and it's clear that he loves me as well. Life is good. Loving and being loved, despite whatever financial difficulties we are having... everything else pales in comparison. I am basking in the glow of knowing that I have my own little home, a place that will always be here for me. That doesn't mean that I don't still get restless and have the urge to go on an adventure, but the adventure is sweeter knowing that home is waiting. A real home. My home.
I see the pain specialist tomorrow, and I hope that he can help me. The patch took a few days for the medicine to build up in my system, and it's helping a little, but I'm still quite reliant on painkillers. I feel less shame about using them now, less guilt for taking them. I don't really understand why I feel as though I need to prove myself by enduring large amounts of pain, but I'm realizing that it's pretty silly. If I'm hurting and have the means to lower that pain, why shouldn't I? I would want anyone else to do the same. I do tend to treat myself much more harshly (and abusively) than I would ever treat someone else, but I'm working on overcoming that. I'm still learning how to be kind to myself. It's a long process, but one that is proving worthwhile. I think it's contributing to my satisfaction and joy in life. C is wonderful, but he is not and cannot be my everything. It would be unhealthy for me to expect that. I need to find my own joy and satisfaction outside of him and our relationship, although he does bring me much joy and satisfaction. That's why I'm grateful that I can still work some. It does a lot for my spirit to know that not only am I still somewhat self-reliant, but I am helping others. It's been hard, this loss of independence and control over my life... but I still have some measures of self-reliance left, and I cling to them.
Now I'm just rambling. I ran out of the effective painkillers my rheumatologist gave me to tide me over, so I had to take a large dose of two other painkillers that I still have. It worked, and I feel very relaxed and happy, which I love. I can see how easy it would be to become a prescription pain killer abuser, but that is something that I do not want. That contributes partially to my guilt over pain meds. I'm afraid that by enjoying the relief from pain and the mild euphoria that the drugs sometimes bring, I am choosing the path of the drug abuser. I know that's not the case, but enjoying the effects of the pain killers frightens me in a way. The weather has been forcing me to take more pain killers than I would normally (the barometric pressure is all over the place!), but I have other, more active ways to relieve the pain as well. C claims that I'm going to kill him with wanting sex so much, but it's just a natural part of who I am. I think he secretly enjoys the fact that I want him so much. In fact, I know he does. He pretends to hold out because he likes to watch me try to convince him to "give me a dose of painkillers". I found that little tidbit out last night, and I pretended offense, but I find it just as fun as he does to try to convince him, so the game will go on.
Summary: getting the medical help I need, despite our financial hardships. (Payment plans FTW!) Life is good. I love my husband, and I love being married. Took some meds, I feel good, and I borrowed some books from the library so I've been reading like crazy lately. I've been more fatigued than usual, so it's a good past-time.
When I told him about the twitchies, he immediately began asking questions. He feels that many of the things wrong with me are puzzle pieces, including the fibromyalgia. Indeed, there are several diseases that fibromyalgia mimics the symptoms of, so in reality I could not have fibro at all, but some other disease. Isn't that interesting? So I'll be getting an MRI, an EEG, and some electrical testing in the next few weeks, to see what's going on with my nervous system. Honestly, there are several suspects that we are trying to see if we can rule out, and MS is one of them. Many of the symptoms of MS are the same as fibro, and the twitchies are definitely of a neurological origin, so it's a suspect until we rule it out. Lupus is another. Basically, we're looking at autoimmune causes it seems, although he agrees with me that the big accident back in '06 may actually have something to do with my nervous system dysfunctions.
Other than that, life's been pretty calm. I've had a few more instances of grieving D, but I know it's normal and healthy, so I just go with it and cry it out. C will often hold me while I cry, which is nice.
Have I mentioned lately that I love being married? The more time passes, the more love I am filled with for C, and the more gratitude wells up and overwhelms me. I am so grateful that I chose this path for my life. I am filled with more satisfaction and happiness than I have ever had in my life. My time in Id was very fulfilling, and comes a close second, but the work I was doing to heal from my past adds an element of discord and instability that is lacking in my current life. I have stability, for the first time in my life. Real, honest to goodness stability. I have C to thank for that. He is a Mr. Steady, that's for sure, and he works so hard to make sure that all of our ends meet. I know I can trust him and rely on him to care for me... and our children, eventually. I love that man, more than I thought I was capable of, and it's clear that he loves me as well. Life is good. Loving and being loved, despite whatever financial difficulties we are having... everything else pales in comparison. I am basking in the glow of knowing that I have my own little home, a place that will always be here for me. That doesn't mean that I don't still get restless and have the urge to go on an adventure, but the adventure is sweeter knowing that home is waiting. A real home. My home.
I see the pain specialist tomorrow, and I hope that he can help me. The patch took a few days for the medicine to build up in my system, and it's helping a little, but I'm still quite reliant on painkillers. I feel less shame about using them now, less guilt for taking them. I don't really understand why I feel as though I need to prove myself by enduring large amounts of pain, but I'm realizing that it's pretty silly. If I'm hurting and have the means to lower that pain, why shouldn't I? I would want anyone else to do the same. I do tend to treat myself much more harshly (and abusively) than I would ever treat someone else, but I'm working on overcoming that. I'm still learning how to be kind to myself. It's a long process, but one that is proving worthwhile. I think it's contributing to my satisfaction and joy in life. C is wonderful, but he is not and cannot be my everything. It would be unhealthy for me to expect that. I need to find my own joy and satisfaction outside of him and our relationship, although he does bring me much joy and satisfaction. That's why I'm grateful that I can still work some. It does a lot for my spirit to know that not only am I still somewhat self-reliant, but I am helping others. It's been hard, this loss of independence and control over my life... but I still have some measures of self-reliance left, and I cling to them.
Now I'm just rambling. I ran out of the effective painkillers my rheumatologist gave me to tide me over, so I had to take a large dose of two other painkillers that I still have. It worked, and I feel very relaxed and happy, which I love. I can see how easy it would be to become a prescription pain killer abuser, but that is something that I do not want. That contributes partially to my guilt over pain meds. I'm afraid that by enjoying the relief from pain and the mild euphoria that the drugs sometimes bring, I am choosing the path of the drug abuser. I know that's not the case, but enjoying the effects of the pain killers frightens me in a way. The weather has been forcing me to take more pain killers than I would normally (the barometric pressure is all over the place!), but I have other, more active ways to relieve the pain as well. C claims that I'm going to kill him with wanting sex so much, but it's just a natural part of who I am. I think he secretly enjoys the fact that I want him so much. In fact, I know he does. He pretends to hold out because he likes to watch me try to convince him to "give me a dose of painkillers". I found that little tidbit out last night, and I pretended offense, but I find it just as fun as he does to try to convince him, so the game will go on.
Summary: getting the medical help I need, despite our financial hardships. (Payment plans FTW!) Life is good. I love my husband, and I love being married. Took some meds, I feel good, and I borrowed some books from the library so I've been reading like crazy lately. I've been more fatigued than usual, so it's a good past-time.
Transitional Gypsy | July 23, 2013 at 10:26 AM
Hope things continue to be good.